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treating the obvious

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I’m not the sharpest finger pointing to the obvious.

A few months ago, my body and mind decided to separate leaving the Me-Who-Functions-More-Or-Less a bit adrift. Coming out of a restaurant where I was entertaining a visiting lecturer and friend, I tripped on the edge of the raised sidewalk and sprawled unceremoniously into the street. In my pre-occupation with having left my car unlocked (and catastrophic visions of his computer having been stolen from it), I failed to coordinate my foot with an edge I’ve step up to thousands of time – this being my favourite pizza place. Not only had I skinned both my knees but I also sprained the tendons holding my knee cap. Of course, seeking treatment was – and often is – out of the question because… well, because, just. because.

A few weeks later, taking my computer bag out of my car, I dropped it. Being my new MacBook and all, I tried to save it with an open-handed dive only to have the bag, book, and ‘puter trash my finger. Now you would think, “Oh, she’s a smart cookie. Perhaps with two injuries she’ll get the karmic bellow about taking responsibility.” Silly you.

I did eventually go to the urgent care clinic for my knee, only because I thought it was broken and there was a sesshin looming in my future. No, no breaks; just a badly sprained patellar tendon. In my defense, I figured that one hardly needs a knee on a regular basis; it’s more of a perform-on-demand kind of joint. Apparently not. I was also too chagrined by my neglect of life and limb that I didn’t ask about my finger. I still haven’t. However, one of our classmates in our weekly “Train your human to be a good dog owner” class came in wearing a splint. It look pretty.

So I got one.

It hurts. A lot. And it’s even harder to find words that don’t use the letters T, R, F, G, V, B for this post.

I sit humbled by the strand of sinew attached to this digital joint, as much for its attempts to communicate with me as for a nuanced dharma teaching on the Second Noble Truth.

We know stuff happens, poop pervades, and disgruntlement is dismally normal. That’s the big NT1 and not only is it True, it is Real. Real because we regularly encounter disruptions, trips, bashed fingers and toes, illness, pain, and loss. These are the sufferings of suffering; the regular stuff we try to avert from, striking a posture of insouciance. Then there is that suffering of change; what was well is now not so well. What was whole is now in parts – or at least stretched beyond its limits. And the suffering that arises out of our tendency to adopt various stances to our experience (conditioned suffering) leads us down pathways seeking a fix-it solution.

It’s helpful to see these three as interdependent and co-emerging. But what is important is not to diminish that “fix-it” tendency especially at the entry-level of suffering. Get the x-ray, get the splint, get the second opinion. That’s simply because when we begin by treating the obvious source of immediate suffering, we defuse the firing of the other two forms of suffering. When we take charge of what is literally and figuratively painfully evident, there is a slightly less possibility that we end up in mental pretzels about our worth or worthiness to be well and whole.

(OK, I’ll admit it. I’ve taken off the splint so I can type this faster. Because. Just. Because.) Now go and find the obvious thing in your life that needs immediate attention and care.

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the sacred and profane of death and dying

Book review of Katy Butler’s Knocking on Heaven’s Door: The Path to a Better Way of Death.

Katy Butler is a daughter, a writer, a life partner, a Buddhist. Mostly, Katy Butler is a daughter of whom more was asked by the medical system than should have been and more was expected of than could have been imagined by anyone as her father journeyed into his death.

This is the story of a family caught in the velocity of a medical momentum which erupts when someone enters the chaotic zone between a good life and good death. It is a heart-wrenching telling of what happens when we unwittingly place our trust in systems rather than people, in hope rather than clarity of thought. It is also a revealing, investigative and hard-nosed exposé of the death-preventing devices we hope would be life-sustaining. Butler invites us to journey with her to the realization that “(t)he honest, natural death is no longer the default pathway.” She begins by bringing us into her parents’ kitchen, sharing a cup of tea with her mother. This is a scene that can evoke memories of sweet poignancy of beginnings or endings; but here, here, there is a different evocation, a different prayer for an ending.

In  my role as a therapist, I have had the privilege to sit with spouses and adult children who were in the center of the turmoil of a loved one’s passing. The primary referral for “treatment” was triggered, they tell me, when they blurted out to their physician a wish that their loved one would die rather than continue to suffer. Typically, the physician panics and sees this as a pathological response to caregiving; some may even report this fearing the distraught spouse or child may act on those wishes. Butler explores with tremendous sensitivity this unspeakable longing for suffering to end without ever dropping into unnecessary angst or drama. But that is just the first three pages. The entire journey she takes with her mother and siblings is a wisdom trail from unknowing to being with not knowing, from waiting to bearing witness, from reacting to systemic demands to compassionate action.

The event line of the book is typical: her father has a stroke. In the usual process of rehabilitation treatment, decisions are made. It is not the decisions themselves but the revelation, through Butler’s skillful foreshadowing, that there are always unforeseeable consequences. And for many of those consequences, the mission of the medical industry often runs orthogonal to the values of the family and ethics of a supported death. The medical history of life-sustaining devices and interventions (surgeries, medication) is brilliantly interwoven into the narrative. Without taking us away from the unfolding tension, it makes us want to shout into the book “Oh, don’t do it! Don’t do it!”

But this is more than a story of one family’s tumultuous love for each other and their battle with the medical system. It is a cautionary tale for each of us, even if we think death is occupied with our future and not our present. It revealed for me that it is not about finding that right person to “pull the plug.” In fact, by the time it gets to that significant point, too many decisions have been made without full awareness and “pulling the plug” plays the smallest role in ending suffering. Butler writes tenderly, “Dying is hard on the dying. Death is hard on the living.”

Dying is not an acceptable topic of conversation. Still. Yet. Even. But converse on it we must because by looking away we only create a larger cauldron of suffering for those to whom we have entrusted our final moment – so wrongly believing it will only be that moment in which they will be called to act. Butler’s story carries this urgent message. We can honour the concept of dying as sacred but it can become a tragic process if we do not consider that getting to death itself can be a tainted and misguided journey.

It is worth mentioning that this book stands as an act of profound courage. It is brutally honest about the nature of relationships, searingly insightful in the potential of healing, and shines an intense light on our ignorance of what naively assume is a good death. For that alone, it is an important one to read.

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If you are interested in learning more about how to prepare and be with that honest death, here are some resources:

The Metta Institute offers training and workshops on end-of-life care as well as resources for practice.

The New York Zen Center for Contemplative Care offers grief and bereavement counselling, end-of-life programs, and meditations. Contemplative Care: A Film is an excellent resource.

Being With Dying Training at Upaya Institute is a rich program ranging in its training by Frank Ostaseki (Metta Institute), Laurie Leitch & Loree Sutton (Social Resilience Model), and Susan Bauer-Wu (Living with chronic illness).

The Canadian Palliative Hospice Care Association lists resources and programs for several professional groups (interestingly no psychologists), family caregivers, and volunteers.

The Quality End of Life Care Coalition of Canada document is a “Blueprint for Action – 2010-2020” to improve end-of-life care and ensure training and funding for Canadians.